The Awful Inhumanity of Using Bleach Enemas to Treat Autistic Children
There are almost no words for the inhumanity of this. Someone is not only promoting a treatment of bleach enemas to treat autistic children — every two hours, for 72 hours, every possible weekend — but they’ve started a religious organization to promote this, with “bishops” and other church officials touting the effectiveness of the Miracle Mineral Solution. Over at Thinking Person’s Guide to Autism, Emily Willingham writes:
can people pay attention to this shit yet or do we still have long ways to go before any of you start to care about us..
2:07 am • 18 April 2014 • 2 notes
This is so unfair my supervisor wants me to work 12 hour shifts next week and i told her plainly i cant manage that i barely manage 7 hour shifts because of my joint hypermobility syndrome and she said “what are you complaining about im 20 years older than you”. Well okay well done but i have a…
2:01 am • 18 April 2014 • 4 notes
There’s a definite line separating people defining you by your disabilities and people acknowledging how they seriously affect your life, and abled/neurotypical people seem to think it’s a lot finer line than it actually is. It makes advocacy 100 times more frustrating than it has to be.
1:58 am • 18 April 2014 • 18 notes
My husband has Ehlers-Danlos Syndrome. He has chronic pain. His doctors have offered him everything going - Tramadol, Morphine, hell they’d probably offer him heroin if they could - to help him manage his pain. Unfortunately he can’t take any of them as he reacts badly to them.
I am female. I…
4:01 am • 17 April 2014 • 35 notes
Can’t believe I was denied for SSI twice and I didn’t even apply for it two times -_- I have heaps more ailments than a lot of ppl on SSI, but ok, cool the government can tell me that having a brain tumor, chronic migraines causing me to throw up and stay in bed, hypotension, POTS, fibro, and diabetes is not severe enough to be “important” to them and/or hinder my abilities. My screws may be loose but I’m not crazy. I know what I deal with. W/e I don’t want their money~
3:48 am • 17 April 2014 • 7 notes
I’m still awake and in pain from today’s / yesterday’s procedures. Once again my sedation didn’t work even though they gave me a higher dose and dosed me twice.
I don’t understand why it doesn’t work for me!! Though last time it worked at least for half of the procedure…
This time I was awake and…
This exact same thing happened to me, the sedation didn’t work at all and the colonoscopy was the most painful thing I’ve ever experienced. I was crying the whole time and I think I may have sprained my doctor’s fingers from how hard I was holding her hand. Two years later I found out from my current GI doctor that if you are on a lot of medications for chronic illness, which I am, then general sedation administered by a nurse doesn’t work and they have to get an anesthesiologist to look at your medications and figure out what specific sedative to give you and exactly how much of it. So sorry that you had to go through this.
3:40 am • 17 April 2014 • 7 notes
walked for about fifteen feet today before my hips started burning so bad i got close to puking and nearly collapsed.
this has to be more than fibro, this has got to be something with a treatment, because if it isn’t, i’m not sure how to keep going like this.
I can relate so much to this. Sending you lots of spoons
3:25 am • 17 April 2014 • 18 notes
Just a little reminder.
YOUR HEALTH COMES BEFORE EVERYTHING ELSE.
Your physical and mental health is way more important than anything else in your life.
Your health comes before school, before work, before seeing your friends, before spending time with your family.
You shouldn’t have to sacrifice your health for other aspects in your life.
Your health comes before anything and everything else.
3:11 am • 17 April 2014 • 2,111 notes
Meet a pharmacy you might actually love. PillPack sorts and delivers medications. Never sort a pill box or wait in line at the pharmacy again! www.pillpack.com
3:10 am • 17 April 2014 • 33 notes
I’m trying so hard not to use ableist language to describe my primary care doctor right now. Finding a new GP is going to be difficult.
7:23 am • 16 April 2014 • 4 notes
It’s hard to have to rely on someone else for assistance, in my case that person is my mom. It’s hard to hear my mom say how difficult and stressful helping me is and question the severity of my illness. Everything she says is understandable because I know that my illness is a huge burden to her, but I don’t know what I can do to change it. I can’t apologize for having a disability that isn’t visible or having an illness that lacks societal validation. I can’t apologize for being disabled. When my mom says these things it’s not only hurtful but also slightly terrifying, because the tone of the conversation implies that her help has a limit and a cost, and she alone has the power to stop helping me at anytime; and without her help there is really no one else in my family to help me and I would be homeless and unable to work due to my illness and it scares me because this feels like such a real possibility and even inevitable. I just have such little control over my own life because of my illness. I feel like her helping me wouldn’t even be an issue if I had a more well known illness like MS or cancer.
7:12 am • 16 April 2014 • 16 notes
heartfilledminds asked: I'm sorry your doctors are so ableist. Don't they understand that living with CFS and Fibro wipes the smile from your face?
Thank you <3 I wish today’s doctor was the only doctor to have ever commented about how I am or am not smiling during an office visit, but I think about 80% of the doctors I have ever seen make comments like this (and I have seem like 50 doctors). Its so unprofessional of them, and frustrating to me as the patient, because I have an enormous amount of difficulty moving the muscles in my face due to pain, and also have a nonverbal learning disability that makes it difficult for me to understand social cues like when to smile, so my facial expression is by no means a reaction to how I am feeling.
Lots of love and spoons to you, dear :)
8:01 am • 15 April 2014 • 2 notes